The School Screening Program
The Community Genetics Program (NSW) School Screening Program provides year 11 students at Emanuel College, Kesser Torah College, Masada College, Moriah College and Reddam House with the opportunity to undergo genetic carrier screening. Screening is particularly relevant for individuals with Ashkenazi Jewish ancestry and those with a history of a genetic disorder in their family. However, the program also includes screening for cystic fibrosis, a condition common in people from a European background.
Students are presented with information about the genetic screening offered by a genetic counsellor, and are given a few days to discuss this with their parents and to decide whether or not they would like to undergo screening before screening program staff return to the school to carry out saliva collections.
The screening is free to the student.
There are two ways students can choose to have their results reported:
The Individual Program is designed for those people who wish to know their own personal screening results. Results are reported to you in the same way as other pathology results. If you are not a carrier of the faulty gene, your results will be sent to you by mail. If your results indicate that you are a genetic carrier, your results will be given to you by a genetic counsellor, so that any questions that may arise can be answered.
Anonymous (Couple-based) reporting
In this program you never receive your individual result. You will receive a PIN. When you and your (future) partner wish to find out whether you are ‘at risk’, as a couple, of having an affected child, you simply contact the laboratory and together providing the lab with both of your PINs. You will be told whether as a couple you are at risk of having a child affected by the disorders for which you were screened. Both partners are required to undergo anonymous screening for couple-based reporting.
For more information, go to the links below: